Email

I don't know how I missed it, but I got an email back in July and it was probably the best response I've had to the Mini Guide. It totally made my day and made all the effort that has gone into the Mini Guides worth it. I'm a pretty easy person to please.

Here is that email.

Thank you M Haas!! Pin It

Free

I just love the word free. It is usually a very positive thing, like when you're discharged from the hospital, that is the best use of the word free.

You can now, download your Mini Guide, by going to the top tab under "Download your Mini", choose the link that most fits you, or heck...download them all.

After you've gone to the link, you'll need to log in using a gmail account. For now, I'm just using Google docs to support the pdfs (I'm not real tech savvy), it will show you the 2 page document, just save it, print it double sided and you now have a treatment tracker for managing your CF care!

Let me know what you think, I'd love to hear your questions, comments or suggestions!

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Twitter

I'm now on Twitter! You'll find me under....

@TheMiniGuide

Hope to see you there!

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Medication Questions?!

I've had some questions in relations to how I use the medication spot on the Mini. So, here is a how to, on how I use it.

First, I organize all my pills into 8 weekly pill containers (I do 4 weeks of pills at a time). I go through my medication list and make my way down the list making sure all the pill are added into the right spots. I put my "AM" Medication & my "Mid Day" medication in the same container, and my "Bedtime" medication in it's own. I keep my "AM & Mid Day Meds" in my purse, since I work full-time out of my home (and since I leave my house at 7am, I eat at work). Once I've gotten some food into me, I take my AM pills, and leave the 2 Mid Day pills in the container to take before I leave work. So, their is no need for 2 separate containers.

Then, my "bedtime" (PM) pills are taken with my nightly routine.

It's pretty simple how I do it. I've found having my medicine in pill boxes/containers is the only way to go, for me. If I don't have them ready to go, they don't get taken.

You don't have to do it my way to use the Mini (of course), just mark off once you've taken all your pills!!

Let me know if it works for you or if you've found a better way! I love hearing other ways of remembering to take your medicine. And I'm always up for changeing things around to improve the Mini for others.

Note: No my pill boxes don't match....but it still does the trick! I laugh because, I'm a little ocd about them, but I keep reminding myself, it doesn't matter. (I also have an obsession with pill boxes and think I've tried just about every kind....do any of you have the same love relationship with them?)

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New Mini Guide

I'm excited to announce the 3rd Mini Guide. It's for Cystic Fibrosis patients who have CFRD. This one is called "CF w/CFRD 2". Let me know what you think? It was created by some of your feedback!!

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Facebook

Hey, check me out...I'm now on Facebook under "Mini Guide". Please be my friend and help me get the word out. I'd like to be able to help as many people as I can.

http://www.facebook.com/theminiguide

Thanks again for all your support!

Take care and keep checking back for more updates!

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Samples

I'm guessing anyone interested would probably be more interested if they had an example of the two different guides.

I am so excited to share the first Mini's. They'd helped so much with my Cystic Fibrosis, I hope they can help many others.

Presenting.....the General CF Mini and CF w/CFRD Mini. Just email me at: theminiguide@gmail.com and I will email you the guide of your choice.

Once you receive your Mini and start using it. Please email me or comment on the blog of what you like about it or how I can improve it.

                                                
                                            

Take care!!

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Presenting Mini.MOV

Hope you like my short clip on the Mini. Keep checking back for more information and updates!!
Thanks for your support!


(Side note this was my first youtube video, and was really awkward for me...but what's life without risks? So, here is to me being "risky"!!)

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The 1st Mini

I created the Mini to help me keep track of how I was taking care of my Cystic Fibrosis. Their are so many things I have to do in a day where if I don't think about it and plan it, it wont get done. I got the vision of the Mini while I was hospitalized in 2010 for the 3rd time. I've made several modifications since the original one was made and I am now ready to share it with the world...we'll other CF'ers.

I hope to have other health class' their own Mini's in the future. For now though, I present....The "General CF Mini" and the "CF w/CFRD Mini".

Their are 7 guides for daily tracking. It also includes a weekly itinerary, that you can use for appointments, to do's, and reminders.  The 2 page guide works best if you print it back to back. That way you can just fold it up and carry it with you.

Once your week is full, print out a new one and save your used one for the next time you go to clinic. That way you can give them accurate data of what you've been doing to take care of your health!

I love this because it makes me more accountable for my health. You can also use the itinerary to document how you are feeling. By putting your symptoms next to the day. (I typically write my symptoms in the margins, but...I'm a calendar girl and have to know what's coming up, or I'll forget!)

If you'd like your own copy. Please follow these instructions.

Please email me at: theminiguide@gmail.com
Include what Mini you'd like. "General CF Mini" or the "CF w/CFRD Mini"

I will get your PDF copy within 48 hrs.

Then, simply print some copies back to back, and start keeping track. Make goals for yourself. Try to do a 110% everyday.

How can you do 110%?? By doing extra treatments, working out more and just going above and beyond what the doctors ask of you. I mean, your only benefiting yourself....so why not?

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