Behind the Mini Guide

I am a 30 year old Cystic Fibrosis patient who has CFRD (CF related diabetes), chronic sinusitis, and a hard time balancing all I need to do with CF, working and being a wife. I created this foldable guide that has a check off list for all the health things I need to do in a day. I also added a section where I could put weekly items to keep track of and where I could tally up my weekly achievements and some diabetes things that aren't set to hard core dates.

It not only helps me on a daily basis remember everything I need to do, but it helps me improve myself and not stress about everything I need to do. I also have used these to bring to clinic to brain storm with clinic when I'm feeling like I need a new/revised treatment plan.

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5 Customized Mini's

In honor of CF awareness month I'm giving away 5 customized Mini's on my Facebook page.

https://www.facebook.com/theminiguide?directed_target_id=0

Just comment on the link talking about the giveaway and the first 5 people who comment I'll work with via email and we'll get them a customized Mini to help either a CF patient or caregiver.

Why am I giving this away? Because, writing down and seeing how I am taking care of myself daily has really improved my health and I'd love to help you out. It's worth a shot to at least try it. It wont hurt my feeling if you don't end up using it long term. If it just helps 1 CFer be more compliant, I will be happy I shared what works for me! Pin It

Email

I don't know how I missed it, but I got an email back in July and it was probably the best response I've had to the Mini Guide. It totally made my day and made all the effort that has gone into the Mini Guides worth it. I'm a pretty easy person to please.

Here is that email.

Thank you M Haas!! Pin It

Free

I just love the word free. It is usually a very positive thing, like when you're discharged from the hospital, that is the best use of the word free.

You can now, download your Mini Guide, by going to the top tab under "Download your Mini", choose the link that most fits you, or heck...download them all.

After you've gone to the link, you'll need to log in using a gmail account. For now, I'm just using Google docs to support the pdfs (I'm not real tech savvy), it will show you the 2 page document, just save it, print it double sided and you now have a treatment tracker for managing your CF care!

Let me know what you think, I'd love to hear your questions, comments or suggestions!

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Twitter

I'm now on Twitter! You'll find me under....

@TheMiniGuide

Hope to see you there!

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Medication Questions?!

I've had some questions in relations to how I use the medication spot on the Mini. So, here is a how to, on how I use it.

First, I organize all my pills into 8 weekly pill containers (I do 4 weeks of pills at a time). I go through my medication list and make my way down the list making sure all the pill are added into the right spots. I put my "AM" Medication & my "Mid Day" medication in the same container, and my "Bedtime" medication in it's own. I keep my "AM & Mid Day Meds" in my purse, since I work full-time out of my home (and since I leave my house at 7am, I eat at work). Once I've gotten some food into me, I take my AM pills, and leave the 2 Mid Day pills in the container to take before I leave work. So, their is no need for 2 separate containers.

Then, my "bedtime" (PM) pills are taken with my nightly routine.

It's pretty simple how I do it. I've found having my medicine in pill boxes/containers is the only way to go, for me. If I don't have them ready to go, they don't get taken.

You don't have to do it my way to use the Mini (of course), just mark off once you've taken all your pills!!

Let me know if it works for you or if you've found a better way! I love hearing other ways of remembering to take your medicine. And I'm always up for changeing things around to improve the Mini for others.

Note: No my pill boxes don't match....but it still does the trick! I laugh because, I'm a little ocd about them, but I keep reminding myself, it doesn't matter. (I also have an obsession with pill boxes and think I've tried just about every kind....do any of you have the same love relationship with them?)

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New Mini Guide

I'm excited to announce the 3rd Mini Guide. It's for Cystic Fibrosis patients who have CFRD. This one is called "CF w/CFRD 2". Let me know what you think? It was created by some of your feedback!!

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